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Heartfelt Story About T-Jays Schooling in Mapperley

We have been made aware of T-Jay’s story and his family’s wish for him to stay at Westdale Junior School. We have asked both Westdale School and Nova Education Trust for a comment, but none has been made.

It is a story that, thankfully, most of us do not have to deal with. Whatever the reasons for stopping his transition from Westdale Infants to Juniors, it is letting T-Jay down.

This is the story of a little boy and his family who are having to fight the system to get what every child deserves, and that’s an education that meets his needs.

T-Jay’s needs are a little more than other children of his age because he has Duchenne Muscular Dystrophy, he’s now 7 years old, he will be lucky if he’s not in a wheelchair by 11 years old, so his life needs to be as ‘normal’ as possible for as long as possible because soon it won’t be.

Duchenne is devastating condition and you would think, no expect, that he would get as much support as possible from the education system, and let’s face it, with a shorter life expectancy his time at school will represent the greater part of his life.

T-Jay is not getting this support, his mum isn’t just having to fight to keep T-Jays life normal, nor just making sure her other 2 kids don’t miss out because of the time and dedication it takes to care for T-Jay, she is having to fight to ensure his transfer to Westdale Junior School, where he is already settled.

The below letter is the redacted formal complaint sent to the Nova Education Trust by T-Jays mother.

Does this kind of thing happen elsewhere?

5 comments
  1. Kate Elizabeth

    My son Jayden also has Duchenne Muscular Dystrophy, living with this condition day to day is devastating for our family. For T-Jay’s family to be put through this distressing on top of day to day Duchenne struggles is disgusting. I hope the school have the decency to realise what is important here, T-Jay’s school life and future.

  2. Ellie

    The school has someone lined up to help. They might be even better than your previous pca. They will certainly have more knowledge of the school and needs of the older age group. You should give them a chance and not be too quick to judge. It’s a ‘Normal’ course of life that children change school and teachers/support. I’m not sure why you can’t see it as an exciting new adventure for your son.

    1. Alan Dawson
      Alan Dawson

      Hello Ellie. Thanks for taking time to read and comment on this. There is always a range of opinions about this kind of human interest story. We have also been contacted by parents who have faced similar problems. It is a difficult subject for all concerned.

  3. Hannah rose

    I don’t see the problem… they have told you he will still have 1:1 support (a huge luxury in educations current climate) and that this person will be trained?? What more do you want lol?
    Things change, circumstances change but the school are still putting things in place for you. Change is a life lesson in itself.
    Just because it isn’t what you wanted to hear or isn’t the person you wanted to look after your son, doesn’t mean you should smear a school or its senior leadership team.

    1. Alan Dawson
      Alan Dawson

      Hello Hannah. Thanks for taking time to read and comment on this. There is always a range of opinions about this kind of human interest story. We have also been contacted by parents who have faced similar problems. It is a difficult subject for all concerned.

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